|
|
- The ISSHOOs project has produced the first consensus-derived recommendations for collecting and reporting a harmonised set of socio-demographic, equity-relevant data in all human adult pain research.
- The ISSHOOs Recommendations are the result of a 5-stage project that prioritised involving people with a lived experience of persistent pain; diverse, global engagement; and collaboration with interdisciplinary experts.
- This project involved 304 contributors from 45 countries, across six continents. 46% had a lived experience of persistent pain.
What?
|
The ISSHOOs project has
achieved: |
|
How?
Why?
|
This project involved 5 consecutive stages: Routinely collecting 'equity relevant' data
has the potential to: |
Stage 1: Two Scoping Reviews informed an initial list of 43 equity-relevant items for consideration.
These items (question and response sets) were organised according to the PROGRESS-Plus equity framework. Stage 2: International Delphi study A group of 168 international experts participated in a 3-stage Delphi study designed to:
Stage 3: Consensus meeting process The list of items that reached agreement to include in the Delphi study were considered and discussed by global interdisciplinary experts and interest-holders in an online consensus meeting process. Two draft sets of items (ISSHOOS Set A and ISSHOOs Set B) were consolidated. Stage 4: Focus groups 2 researcher focus groups (19 participants from 14 countries) and 5 'patient and public' focus groups (20 participants from 9 countries) were conducted. Participants provided feedback and suggestions on the draft recommendations, discussing aspects such as perceived meaning, acceptability, appropriateness and understandability. These discussions led to refinement of the items and accompanying information. Stage 5: Writing and dissemination
|
